Our new film about CCHS “Ondine” has been selected to take part in Disorder: Rare Disease Film Festival in New York!!!
Imagine having to listen to the sound of your child breathing 24/7, because each and every moment it can stop.
Who are we?
We help people suffering from CCHS (Ondine’s Curse) and their families as well as supporting research on finding the cure.
News
Our new film about CCHS “Ondine” has been selected to take part in Arizona International Film Festival in Tucson, which will run from April 15 to April 26, 2020. It will be its international premiere. It’s the longest running film festival in Arizona!!!
Unfortunately, due to the outbreak of Coronavirus, the special screening of our film “Ondine”, scheduled to March 17th, is cancelled. We will try to postpone it to another time in future. We will keep you informed on Facebook and our website.
On March 17th there will be a special screening of the film “Ondine” in Warsaw, at cinema Elektronik, organised by our Foundation – ALL profits from this screening will be used to fund the research for the cure for CCHS!!!!
With great pleasure we would like to inform You, that the Founders of Polish CCHS Foundation “Lift the curse”, Tomasz Śliwiński and Magda Hueckel, received the prestigious EURORDIS Black Pearl Award 2020 in the category Visual and Audio Media. “The Visual and Audio Media Award recognises Tomasz Śliwiński and Magda Hueckel’s important and impactful documentary film, …
CALL FOR RESEARCH 2020 There will be 2 grants supported. Grant awards will support pilot projects which will provide up to $100,000 over 1 year for expenses related to the research project, which may include research laboratory supplies, equipment, publication charges for manuscripts that pertain directly to the funded project, and other research expenses. APPLICATION …