We kindly invite you to watch our music video to the song by Julia Marcell “Ondine (Jolene cover)” created especially for our music compilation Ondinata. Songs for Ondine.
Imagine having to listen to the sound of your child breathing 24/7, because each and every moment it can stop.
Who are we?
We help people suffering from CCHS (Ondine’s Curse) and their families as well as supporting research on finding the cure.
Our film “Ondine” was awarded as BEST FICTION FILM in NOT SHORT AT ALL FILM COMPETITION at IN THE PALACE International Short Film Festival in Bulgaria.
Today is International Rare Disease Day. There this is the day of PREMIERE of our new project ONDINATA. Songs for Ondine!!!
Today is 6th International CCHS Day. On this occasion, Polish CCHS Foundation “Lift the curse” launches a new project: ONDINATA. Songs for Ondine!!!
Our film about CCHS “Ondine”, co-produced by our Foundation, has received Honorary Mention at Polish Film Festival Los Angeles!!!!
Our film about CCHS “Ondine” will have its UK premiere at Raindance Film Festival in London!!!! It will be screened in “Urban Outcast” section. The festival will take place online between October 28th and November 7th.