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About CCHS

CCHS, Ondine’s Curse  (Congenital Central Hypoventilation Syndrome) – is a rare, genetic disorder, potentially deadly. Primary symptoms are respiratory failure and pulmonary arrests – mostly during sleep. Hypercapnia (elevated CO2 levels in blood) and hypoxemia (low levels of O2 in blood) accompanied with impaired organism reactions to those conditions.

All afflicted by CCHS require lifetime Ventilation Support during sleep, some even while being awake.

Types of ventilation used:
– Positive pressure ventilation with tracheotomy.
– Non-invasive, positive pressure ventilation with a mask.
– Negative pressure ventilation
– Diaphragm pacing/diaphragm nerve stimulator

More info on CCHS can be found on CCHS Network website.

Ondinata_08

ONDINATA

SONGS FOR ONDINE. New project created by our Foundation!!!

CLICK HERE ›

www

ONDINE

New film about CCHS co-produced by our Foundation!!!

GO TO MOVIE PAGE ›

O filmie

OUR CURSE

Read about the movie which started it all.

GO TO MOVIE PAGE ›

Contact

fundacja@zdejmijklatwe.org

Facebook / zdejmijklatwe

©2023 Polish CCHS Foundation.