CCHS, Ondine’s Curse (Congenital Central Hypoventilation Syndrome) – is a rare, genetic disorder, potentially deadly. Primary symptoms are respiratory failure and pulmonary arrests – mostly during sleep. Hypercapnia (elevated CO2 levels in blood) and hypoxemia (low levels of O2 in blood) accompanied with impaired organism reactions to those conditions.
All afflicted by CCHS require lifetime Ventilation Support during sleep, some even while being awake.
Types of ventilation used:
– Positive pressure ventilation with tracheotomy.
– Non-invasive, positive pressure ventilation with a mask.
– Negative pressure ventilation
– Diaphragm pacing/diaphragm nerve stimulator
More info on CCHS can be found on CCHS Network website.