With great pleasure we would like to inform you that on March 14th 2019, there was the first closed screening of a new film about CCHS “Ondine”. The film was created by the authors of the Oscar nominated documentary about CCHS “Our Curse” – VP of our foundation, Tomasz Śliwiński (director, screenwriter) and CEO of our foundation, Magda Hueckel (screenwriter, production designer, set designer, co-producer).
Polish CCHS Foundation “Lift the Curse” is the co-producer of the film.
It was financially supported by German CCHS Support Group (Selbsthilfegruppe Undine Syndrom e.V) and Italian CCHS Association (A.I.S.I.C.C. – Associazione Italiana per la Sindrome da Ipoventilazione Centrale Congenita).
We hope this film will help us increase awareness about CCHS. We will keep you updated about the next screenings.
We encourage you to follow our Facebook page about the film, where you can find more information: Ondine.
And here are some photos from the first screening: