“Lift the Curse” Polish CCHS Foundation delivers comprehensive aid to people suffering CCHS (Ondine’s Curse) and to their their families, but also supports scientific research on finding the cure for this disease.
The main goals of the Foundation are: to improve health services, improve patient’s and patient’s families life quality, increase awareness of CCHS and build better international relationships between patients, scientists and healthcare providers.
The Foundation began its operation in 2015. It was founded by Magda Hueckel, Tomasz Śliwiński and Anna Palusińska – determined, and positive parents, who believe that they can change the world and lift the Curse, from their children, but also from all who are suffering CCHS.
We work closely with French CCHS Association (AFS Ondine) and American CCHS Foundation. Magda Hueckel and Tomasz Śliwiński are its regional coordinators for Poland.
More info on American CCHS Foundation can be found here.
More info on French CCHS Association can be found here.