OUR CURSE (pl. NASZA KLĄTWA) (directed by Tomasz Śliwiński, Poland 2013, 27 minut)
The film is a personal statement of the director and his wife, Magda Hueckel, who have to deal with a very rare and incurable disease of their newborn child – the Ondine’s Curse (also known as CCHS, congenital central hypoventilation syndrome). People affected with this disease stop breathing during sleep and require a lifetime mechanical ventilation on a ventilator. The film shows the process of taming fear associated with the disease. The story of the film characters is presented on the blog: www.leoblog.pl.
The film got many awards at the film festivals all over the world and was nominated for The Academy Award in the category Documentary Short Subject in 2015.
The success of the film increased interest in CCHS. As a result, CCHS Foundation has been established in USA. Its main aim is to raise money to support CCHS research.
Magda Hueckel, co-author and character of the film, is CEO and co-funder of Polish CCHS Foundation “Lift the curse”. Tomasz Śliwiński, director and character of the film, is VP of Polish CCHS Foundation “Lift the curse”. They both are Regional Coordinators of american CCHS Foundation in Poland.
Film is now available online at New York Times Op-Docs:
More information about the film -> www.leoblog.pl/en/our-curse-the-movie/