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News

Subsequent implementations of diaphragm pacers in Poland

10.06.2022

We are happy to announce that the next 2 Avery Biomedical Devices diaphragm nerve stimulators were successfully implanted in two children suffering from CCHS, Dawid and Daniel. The operations were again performed by a wonderful and committed team of the Department of Neurosurgery at the Copernicus Hospital in Gdańsk. Congratulations and big thanks to the operator Dr. …

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Допомога сім’ям CCHS в Україні / Help for CCHS families in Ukraine

27.02.2022

Польський фонд CCHS «Зніміть прокляття» шукає сім’ї з CCHS в Україні. Ми хочемо надати будь-яку допомогу у війні, що триває, особливо з безпечним переїздом до Польщі. Якщо ви є або знаєте когось із них, будь ласка, повідомте нам про це на: fundacja@zdejmijklatwe.org The Polish CCHS Foundation “Lift the curse” is searching for families with CCHS …

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Launch of the first CCHS center in Poland

10.12.2021

We are happy to announce that at the beginning of December 2021, the first CCHS Care Center in Poland was launched.

CCHS and COVID-19

28.09.2021

A few patients with CCHS acquired the COVID-19 infection. The presentation, clinical course, and outcome of COVID-19 infection in individuals with CCHS is currently unknown. Dr. Ajay Kasi from the Division of Pediatric Pulmonology at Children’s Healthcare of Atlanta and Emory University is conducting a voluntary questionnaire research study.

Implementation of diaphragm pacers in Poland

25.09.2021

We are happy to announce that in September 2021, Avery Biomedical Devices diaphragm nerve stimulators were successfully implanted in two children suffering from CCHS, Laura and Wiktor. The operations were performed by a wonderful and committed team of the Department of Neurosurgery at the Copernicus Hospital in Gdańsk. Congratulations and big thanks to the operator …

Czytaj dalej ›

First CCHS Centre in Poland

11.08.2021

With great pleasure we would like to inform you that Medical University of Gdańsk, together with Polish CCHS Foundation “Lift the curse”, will launch Polish CCHS Centre, which will take complex care of people suffering from CCHS in Poland. It will include complex medical examination of health of CCHS patients and also all needed medical tests.

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Ondinata_08

ONDINATA

SONGS FOR ONDINE. New project created by our Foundation!!!

CLICK HERE ›

www

ONDINE

New film about CCHS co-produced by our Foundation!!!

GO TO MOVIE PAGE ›

O filmie

OUR CURSE

Read about the movie which started it all.

GO TO MOVIE PAGE ›

Contact

fundacja@zdejmijklatwe.org

Facebook / zdejmijklatwe

©2023 Polish CCHS Foundation.