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Subsequent implementations of diaphragm pacers in Poland

10.06.2022
We are happy to announce that the next 2 Avery Biomedical Devices diaphragm nerve stimulators were successfully implanted in two children suffering from CCHS, Dawid and Daniel.
The operations were again performed by a wonderful and committed team of the Department of Neurosurgery at the Copernicus Hospital in Gdańsk. Congratulations and big thanks to the operator Dr. Wojciech Wasilewski and his team!

The procedure was performed under the supervision of Dr. Pelle Nillson, an experienced surgeon from Uppsala.
We also congratulate the brave patients and their determined parents who put a lot of effort into the process of preparing for the operations.
Photography of family of Dawid and Daniel after the operation.  Photo courtesy Renata Kaczmarek, mother of Daniel.

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ONDINATA

SONGS FOR ONDINE. New project created by our Foundation!!!

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ONDINE

New film about CCHS co-produced by our Foundation!!!

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OUR CURSE

Read about the movie which started it all.

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