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MAGDA HUECKELCEO and co-founder of
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Mother of CCHS afflicted Leo, author of a blog about living with the disease: www.leoblog.pl. Co-author and one of the main characters in an Oscar nominated film “Our Curse”.
Visual artist, theatrical photographer, scenographer, traveler. She graduated Gdańsk Academy of Fine Arts. She participated in many exhibitions, in Poland and abroad, she is an author of photo albums “Anima, Pictures from Africa” and “Hueckel. Theatre”
More info: www.hueckel.com.pl
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TOMASZ ŚLIWIŃSKIVP of Polish CCHS Foundation “Lift the Curse”,
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Father of CCHS afflicted Leo (www.leoblog.pl), director and protagonist in an Oscar nominated film “Our Curse”.
Filmmaker, traveler. Gdansk University of Technology, Wajda Film School and Warsaw Film School graduate. Was awarded many prizes during international film festivals, including Sheffield Doc/Fest, Raindance Film Festival and Aspen ShorsFest.
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KATARZYNA KLIMCZUKMember of the Council of
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Mother of CCHS afflicted Juliusz (also dealing with Hirschsprung’s disease and neuroblastoma).
Previously, she was professionally involved in the organization of festivals and cultural events, she worked as a consultant and translator.
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JOLANTA KOŁODZIEJCZYKMember of the Council of
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Ph.D. Anesthesiologist.
She works in Anesthesiology and Intensive Care Clinic in The Children’s Memorial Health Institute in Warsaw, Poland, and in Long Term In-home Care Program for Children team.
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LUCYNA PAŁKOWSKAMember of the Council of
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Ph.D. Anesthesiologist.
She works in M. Płażyński Pediatrics Hospital in Gdańsk, in the Intensive Care Unit, she is a member of Prolonged In-home Artificial Ventilation team.
Since 2007 she takes care of children with primary immunodeficiencies of various aetiology. To this day she acquired many certificates that prove her artificial ventilation expertise.
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ANNA TALAREK-GAŁĄZKAMember of the Council of
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Mother of CCHS afflicted Aleksander.