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  • About us
    • Our mission
    • People
    • The Leo effect
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    • About CCHS
    • Ondine Myth
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  • CCHS in Poland
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    • Diaphragm pacemakers in Poland
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    • OUR CURSE – film
    • ONDINE – film
    • ONDINATA. Songs for Ondine
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People

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MAGDA HUECKEL

CEO and co-founder of
Polish CCHS Foundation “Lift the Curse”,
CCHS Foundation coordinator for Poland

Mother of CCHS afflicted Leo, author of a blog about living with the disease: www.leoblog.pl. Co-author and one of the main characters in an Oscar nominated film “Our Curse”.

Visual artist, theatrical photographer, scenographer, traveler. She graduated Gdańsk Academy of Fine Arts. She participated in many exhibitions, in Poland and abroad, she is an author of photo albums “Anima, Pictures from Africa” and “Hueckel. Theatre”
More info: www.hueckel.com.pl

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TOMASZ ŚLIWIŃSKI

VP of Polish CCHS Foundation “Lift the Curse”,
CCHS Foundation coordinator for Poland

Father of CCHS afflicted Leo (www.leoblog.pl), director and protagonist in an Oscar nominated film “Our Curse”.

Filmmaker, traveler. Gdansk University of Technology, Wajda Film School and Warsaw Film School graduate. Was awarded many prizes during international film festivals, including Sheffield Doc/Fest, Raindance Film Festival and Aspen ShorsFest.

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KATARZYNA KLIMCZUK

Member of the Council of
Polish CCHS Foundation “Lift the Curse”

Mother of CCHS afflicted Juliusz (also dealing with Hirschsprung’s disease and neuroblastoma).
Previously, she was professionally involved in the organization of festivals and cultural events, she worked as a consultant and translator.

JOLANTA KOŁODZIEJCZYK

Member of the Council of
Polish CCHS Foundation “Lift the Curse”

Ph.D. Anesthesiologist.

She works in Anesthesiology and Intensive Care Clinic in The Children’s Memorial Health Institute in Warsaw, Poland, and in Long Term In-home Care Program for Children team.

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LUCYNA PAŁKOWSKA

Member of the Council of
Polish CCHS Foundation “Lift the Curse”

Ph.D. Anesthesiologist.

She works in M. Płażyński Pediatrics Hospital in Gdańsk, in the Intensive Care Unit, she is a member of Prolonged In-home Artificial Ventilation team.
Since 2007 she takes care of children with primary immunodeficiencies of various aetiology. To this day she acquired many certificates that prove her artificial ventilation expertise.

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ANNA TALAREK-GAŁĄZKA

Member of the Council of
Polish CCHS Foundation “Lift the Curse”

Mother of CCHS afflicted Aleksander.

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ONDINATA

SONGS FOR ONDINE. New project created by our Foundation!!!

CLICK HERE ›

www

ONDINE

New film about CCHS co-produced by our Foundation!!!

GO TO MOVIE PAGE ›

O filmie

OUR CURSE

Read about the movie which started it all.

GO TO MOVIE PAGE ›

Contact

fundacja@zdejmijklatwe.org

Facebook / zdejmijklatwe

©2023 Polish CCHS Foundation.