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  • About CCHS
    • About CCHS
    • Ondine Myth
    • Booklet
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    • Diaphragm pacemakers in Poland
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  • Donation
  • Projects
    • OUR CURSE – film
    • ONDINE – film
    • ONDINATA. Songs for Ondine
  • Contact
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Booklet

We encourage you to read the information booklet prepared for patients suffering from CCHS and their carers.

The purpose of this booklet is to provide patients and caregivers with basic information on how to diagnose and deal with CHS, including the most common form of the disease, which is of Central Congenital Hypoventilation Syndrome (CCHS).

★ Patient information booklet | download

Ondinata_08

ONDINATA

SONGS FOR ONDINE. New project created by our Foundation!!!

CLICK HERE ›

www

ONDINE

New film about CCHS co-produced by our Foundation!!!

GO TO MOVIE PAGE ›

O filmie

OUR CURSE

Read about the movie which started it all.

GO TO MOVIE PAGE ›

Contact

fundacja@zdejmijklatwe.org

Facebook / zdejmijklatwe

©2023 Polish CCHS Foundation.