The CCHS Network, in partnership with NORD (National Organization for Rare Disorders), has launched the CCHS Network One World Registry – CCHS NOW).
The CCHS Foundation raised ~ $151,000.00 in 2016. It will fund 2-3 more CCHS research projects in 2017. The two projects funded in 2016, Doug Bayliss’ and Isabella Ceccherini’s, are progressing with interesting results. Polish CCHS Foundation “Lift the curse” supports the CCHS Foundation in raising money for the research.
We gladly inform that actions that were taken by the Polish CCHS Foundation „Lift the Curse” (First International CCHS Day and action “I sail for Leo”) have contributed to CCHS cure research. Polish CCHS Foundation partners with CCHS Foundation, which chose two projects to support.