November 9th 2019 will be the 5th International CCHS Day!!! For this occasion CCHS Foundation prepared a short film about CCHS. x https://www.youtube.com/watch?v=z82AkGHa6NM You can help our community by financially supporting the Foundation in order to find the cure for CCHS. You can make a donation at CCHS Foundation website: www.cchsnetwork.org.
Bartosz Bielenia, actor playing a character of 22-year-old man having CCHS in “Ondine” by Tomasz Śliwiński, was awarded with a Special Mention at the Warsaw Film Festival for his role. We are very happy and congratulate. We hope this award will help us increase awareness about CCHS. Polish CCHS Foundation “Lift the Curse” is one of the …
With great pleasure we would like to inform you that the world premiere of the new film about CCHS, co-produced by our Foundation, will take place in October at the Warsaw Film Festival in the International Short Films Competition. It’s one of the most important film festivals in the world – it’s in the elite …
Today we have sent presents to the youngest CCHS kids. Inside there are lanterns, kid tattoos, scarves and, what is the most important, little books showing a regular day with the ventilator – walk, playground, reading and safe sleep supported by a special equipment. The books are result of our cooperation with german CCHS Support …
With great pleasure we would like to inform you that on March 14th 2019, there was the first closed screening of a new film about CCHS “Ondine”. The film was created by the authors of the Oscar nominated documentary about CCHS “Our Curse” – VP of our foundation, Tomasz Śliwiński (director, screenwriter) and CEO of our …
5th International CCHS Research Conference will take place from June 20 to June 23, 2018 in St. Louis, Missouri, USA.